Hello everyone! I wanted to give a little update.
Michelle had her pain management appointment recently. I attended as a support. Unfortunately I can't say there was any ground breaking changes to her treatment plan. In her doctors defense, Michelle's case is complicated and pain meds need to be chosen carefully due to her liver failure. And with any pain management plan there is often trial and error. So at this point she is to take meds around the clock and try to get the pain under control; rather that what she had been doing, which was trying to tough out as much pain as possible then take something when it was unbearable. A few days into this plan and she's still trying to find some relief. I feel so badly for her, her pain is so intense.
A big change has occurred in the household. Michelle was finding it hard to get the rest she needed with little man seeking her out throughout the day despite the nanny, and also feeling that he was struggling with seeing her in bed and unwell so often. The nanny has been let go and replaced with care out of the home for little guy, and help to come in for cooking and cleaning. There are still some kinks to be worked out in terms of what to do in evenings when Jarvie is in meetings or there is an emergency. But it was important for Michelle to feel in control of her home and family, so they are going to try their best to make it work. All monies raised will continue to support the family with paying for care for Tater tot, assistance with cleaning and meal preparation, and any supplemental medical needs for Michelle. Michelle's mama is in town for the holidays, so this is great for the family!
Please pray for Michelle. That the medical team will empathize with her struggle and put new wisdom and energy into her care. That she will get the treatment she needs to end her suffering. And of course for the family's well being.
Thank you all for your continuing support. A special shout out to the Dellolis clan who purchased a laptop for Michelle! This is fantastic! She can stay in touch when she can't get out of bed, and it will be a great resource in the event of a hospitalization. Thank you!
Tracey
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